Health 29 March 2026 Daily Monitor (Uganda)
Reducing Down Syndrome Risks and Tackling Stigma in Soroti
Health experts in Soroti recommend folic acid intake six months before conception and prompt antenatal care to lower Down Syndrome risks, amid calls for skilling centers to empower affected children. Community leaders highlight ongoing stigma and neglect, urging greater support during World Down Syndrome Day. Source: https://www.monitor.co.ug/uganda/news/national/how-to-minimize-risk-of-down-syndrome-5406968
In Soroti City, around 100 children live with Down Syndrome, a genetic disorder from an extra chromosome 21, leading to intellectual disabilities, developmental delays, and unique physical features. The risk rises with the mother’s age and stems from a random genetic occurrence.
Sr Janet Alabo, Soroti district’s acting health officer for maternal health, stresses that while incurable, risks can be minimized. She advises women to take folic acid for six months preconception to prevent congenital issues like Down Syndrome, often linked to lack of awareness. Early antenatal care, starting immediately upon pregnancy confirmation and including eight visits, is also crucial.
John Michael Egadu, chairperson of Soroti Disability Persons Union (SODIPU), notes persistent myths and stigma, insisting it’s not a curse. Families report neglect from government and parents alike.
Parents like Peter Oringo and Rose Alaso appeal for economic empowerment through government-funded skilling centers in Teso region. They believe training will foster independence and reduce the condition’s impact. Soroti district speaker Stephen Olebe calls for love, care, and community integration to prevent further marginalization.
Inclusion Uganda’s Executive Director Primrose Nabukalu identifies stigma as a key obstacle. Last Monday, Soroti City marked World Down Syndrome Day with Inclusion Uganda’s support, themed ‘Together Against Loneliness’.